PatientsLikeMe is the first and only online data-sharing platform for patients with any condition. Our products and services offer industry partners unprecedented access to real-world data, custom research capabilities, and patient participation in clinical research. Our team has deep expertise in utilizing patient-reported data to solve industry problems and achieve research and commercial objectives.
With more than 115,000 patient members and over 1,000 conditions reported, PatientsLikeMe allows patients to see what interventions are working for thousands of others. This unrivaled volume of data improves the lives of patients by informing treatment decisions, enhancing patient-doctor communication and creating new knowledge based on real-world experiences. Our forum is also where patients can get answers, advice and support from patients like them.
Based in Cambridge, Massachusetts, PatientsLikeMe was founded in 2004 by brothers James Heywood and Benjamin Heywood and their long-time friend and fellow MIT graduate, Jeff Cole. They were inspired to create PatientsLikeMe after James and Benjamin’s brother Stephen was diagnosed with ALS at the age of 29. The Heywood family’s fight to save Stephen has been chronicled in the book His Brother’s Keeper as well as the documentary “So Much So Fast.”