PatientsLikeMe sells access to our comprehensive research platform, which contains a real world population of 115,000+ patients with over 1,000 conditions.
Why real world health research?
Most clinical research is built to service the healthiest subsets of a particular condition in order to assess treatment efficacy. This approach does not address what will happen in the real world. PatientsLikeMe helps answer that question by aggregating real world patients with multiple conditions to best characterize their full health experience as well as its impact on their quality of life.
Why use the PatientsLikeMe platform for Custom Research?
PatientsLikeMe offers advantages at every step of the research study process.
PatientsLikeMe collects such a rich amount of patient data – including genotype, individual genetic mutations, phenotype, quality of life measures, treatments and symptoms – that designing your study can have multiple outcome measures rather than focusing on one primary and perhaps one secondary outcome. This allows for flexibility in hypothesis generation, population identification, data analysis and conclusions.
Study Protocol and Feasibility
The PatientsLikeMe Research Team can author protocols for studies to be undertaken on the platform and/or provide feasibility services for each study. Our Research Team knows the data that we collect best and can help accelerate your successful research study.
PatientsLikeMe has the proven ability to quickly aggregate large patient populations with a particular disease or combination of conditions. Faster recruitment means faster completion.
The PatientsLikeMe method for data collection has been proven to collect both point in time and single participant longitudinal data. This type of engagement is unparalleled in the research world and opens new doors to potential research projects unlimited by conventional wisdom.
Throughout the research process, PatientsLikeMe offers real-time access to study data for interim analyses and/or data integrity auditing through a proprietary API or file data export. The API allows for cross-tab/pivot analysis of data as well as data export in .csv format. If you want just the raw data, we can provide that in cross sections as needed.
PatientsLikeMe offers full service research analytics capabilities on our platform. We often collaborate on research as well, which provides you with many options for how to complete the analysis of your accumulated dataset.
Article and Poster Production
PatientsLikeMe offers full manuscript and poster development as well as submission services.