PatientsLikeMe Research

PatientsLikeMe is a clinical research platform that provides real-world, real-time insight into thousands of diseases and conditions. Our members have generated more than 35 million data points about disease, creating one of the largest repositories of patient-reported, cross-condition data available today. Their data have helped our researchers to refute traditional randomized clinical trials, model multiple diseases, validate quality measures, shed new light on medication adherence, and add and validate patient reported outcomes. They have also been used with clinicians to illuminate the patient journey, and played a pivotal role in research partnerships with the world’s top 20 pharmaceutical companies, federal regulatory agencies, research institutions and nonprofit organizations.

Featured Research

Publications that feature PatientsLikeMe

  • PatientsLikeMe is frequently cited by other publications in fields as diverse as Law, Sociology, and Medicine.

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  • Paul Wicks, Ph.D.
    Paul Wicks, Ph.D.
    Vice President of Innovation

    An internationally recognized expert in the psychological aspects of neurodegenerative conditions, Paul is responsible for the scientific and medical validity of PatientsLikeMe’s research platform. He leads a team of experts charged with conducting scientific research that generates insights from the personal health data shared by patient members. Under Paul’s direction, the PatientsLikeMe R&D team has produced numerous peer-reviewed publications in major scientific journals. These include Nature Biotechnology, Movement Disorders and European Journal of Neurology. In addition to working with the world’s foremost research organizations, the R&D team also provides professional services to the company’s commercial partners. Prior to joining PatientsLikeMe, Paul worked directly with patients from around the world to study cognition in rare forms of ALS and the psychological consequences of Parkinson’s disease.  A frequent speaker on the power of personalized medicine in improving health outcomes, Paul has received numerous awards including the 2011 MIT Technology Review Humanitarian of the Year and the British Neuropsychiatry Association prize for best speaker, an honor he has won twice. Paul was named a TED Fellow in 2012, and in 2013 was a TED conference presenter. He completed his Ph.D. thesis at King’s College London at the age of 24.