Much is known medically about TYSABRI from manufacturer clinical trials and registration studies, but comparatively little is known about the utility and value of TYSABRI in the post-marketing real world. The risk of progressive multifocal leukoencephalopathy (PML) is perhaps TYSABRI’s most widely known and least understood real-world attribute given the rare but potentially catastrophic consequences of PML. Much can be learned from the growing body of real-world treatment experiences from patients who believe the product’s benefits outweigh its risks.
The purpose of this report is to evaluate the real-world value of TYSABRI based upon the self-reported experiences of multiple sclerosis (MS) patients who have used TYSABRI over time. Professionals who focus on MS today—from neurological nurses to Wall Street analysts—must recognize that patients are a growing and driving force behind treatment selection in this therapeutic category. Incorporating the patient’s perspective and experience into one’s understanding of TYSABRI usage is therefore critical to understanding TYSABRI’s effectiveness.
- Who are TYSABRI users?
- What characteristics define them?
- What attitudes do they express?
- What are their experiences with the product?
- How long do patients stay on TYSABRI?
- Why do they discontinue?
- Based upon real-world evidence, is TYSABRI appropriately priced given its efficacy and side effect attributes?
Answers to these and other questions derived from shared real-world patient experiences with TYSABRI on PatientsLikeMe constitute the focus of this report.
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NOTE: This report is NOT sponsored by any pharmaceutical manufacturer or agent of a pharmaceutical manufacturer. All data sourced from PatientsLikeMe unless specifically noted.