Does TYSABRI patient experience in the real world justify its value?
Much is known medically about TYSABRI from manufacturer clinical trials and registration studies, but comparatively little is known about the utility and value of TYSABRI in the post-marketing real world. The risk of progressive multifocal leukoencephalopathy (PML) is perhaps TYSABRI’s most widely known and least understood real-world attribute given the rare but potentially catastrophic consequences of PML. Much can be learned from the growing body of real-world treatment experiences from patients who believe the product’s benefits outweigh its risks.
The purpose of this report is to evaluate the real-world value of TYSABRI based upon the self-reported experiences of multiple sclerosis (MS) patients who have used TYSABRI over time. Professionals who focus on MS today—from neurological nurses to Wall Street analysts—must recognize that patients are a growing and driving force behind treatment selection in this therapeutic category. Incorporating the patient’s perspective and experience into one’s understanding of TYSABRI usage is therefore critical to understanding TYSABRI’s effectiveness.
For example:
- Who are TYSABRI users?
- What characteristics define them?
- What attitudes do they express?
- What are their experiences with the product?
- How long do patients stay on TYSABRI?
- Why do they discontinue?
- Based upon real-world evidence, is TYSABRI appropriately priced given its efficacy and side effect attributes?
Answers to these and other questions derived from shared real-world patient experiences with TYSABRI on PatientsLikeMe constitute the focus of this report.
Are you ready to tune into the growing and driving force behind treatment selection—the patient?
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NOTE: This report is NOT sponsored by any pharmaceutical manufacturer or agent of a pharmaceutical manufacturer. All data sourced from PatientsLikeMe unless specifically noted.